2021/Pop-ups/Very Sensitive Data on Your Personal Website

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Very Sensitive Data on Your Personal Website 2021 is an IndieWebCamp Pop-ups 2021 session. Suppose you have implemented private posts on your website, which only you can view. What are the use cases for, and implications of, posting sensitive data like medical records on your own website?

Details

Possible Topics

Use Case: Storing medical information on your own site

  • Directly provide your past appointment outcomes, diagnosis records, and other forms of medical case history to a doctor or other medical professional
  • Potentially reduce need for direct authorized contact between providers' offices, or between GP and specialist
  • Your medical history is part of your identity; it's reasonable to want to control/maintain canonical archive of materials

Use Case: Authorizing medical providers to retrieve data from your website

  • In the future, the doctor's receptionist gives you an email address or other identifier...
    • You login to your website, then authorize that identifier to view forms of medical data relevant to your appointment. e.g. authorization to view the x-ray image at example.com/2021/05/28/xray.
    • Medical providers are not yet sophisticated enough for this, but this hypothetical use case is additional motivation for UX features already being discussed, such as "invitation" style interface for adding identities to a private post's allow list.
  • There is, or should be, a difference between authorizing individual medical professionals to view your data, and authorizing the hospital/clinic/group to which the provider belongs. (h/t Johannes Ernst)


Use Case: Tracking life data for one's own benefit

  • "Gross" events
    • Some people need to measure "gross" life events for health purposes
    • "literal shit posting" (h/t Template:KartikPrabhu)
  • Bad habits
    • Can be embarassing to admit that you're tracking data to ween yourself off, say, alcohol
  • Good habits
    • Crucially, it can also be embarrassing to publicly announce that you're learning a good habit
      • e.g. learning to cook or some other "basic" life skill

Use Case: Protecting the privacy of others on your site

  • Reply contexts
  • Suppose Angelo Gladding makes a private post with Maxwell Joslyn in the audience. Maxwell Joslyn sees it and writes a reply.
    • It's probably not OK for Maxwell Joslyn to write a public reply to Angelo Gladding's private post!
    • Even the URL of a private post may be sensitive if it contains a content-based slug!
    • Implications for reply context UI, which in turn means additional branches in plumbing code
  • Private RSVPs for public events
    • If I'm sending a private RSVP to a public event, one would hope both parties correctly implemented the code which keeps the RSVP private!
      • displaying counts of RSVPs
      • displaying attendees' names and websites

Plumbing: URL design

  • Opaque/unguessable/capability URLs for posts which are unlisted or private/protected
  • Sortable/guessable URLs can leak existence of private posts
    • Suppose my public permalinks for a given day's posts end in /1, /2, /3, /7, /8, /9, /10.
    • This reveals that I made private posts at /4, /5, and /6!

Use Case: Journals, drafts, and other posts "for my eyes only"

  • May contain ideas formed during heightened emotional states, or which the author later came to regret
  • Must be kept private, lest the author be reflected by material which they did not intend to represent themselves

Plumbing: private-webmention

  • What is the current status of this WebMention extension?
    • Still in the "building interoperable consensus" stage, with few implementations in the wild?
  • How much is progress on visibility/audience interop tied into the progress of private Webmention?

Plumbing: Post properties visibility and audience

  • If someone is on your site, logged in, and viewing your private post, they should be able to see that it's private and they're only able to view it b/c they permission.
    • Should this user be able to see the audience list itself so they know who they may fruitfully share the link with?
  • How much interop is there currently for the audience property? How much is progress on visibility/audience interop tied into the progress of private Webmention?
  • It's straightforward to add visibility/audience properties to your own plumbing, but...
  • ... No widespread agreement about the structure of the audience property in particular
    • Single names?
    • List of names?
    • Allow lists?
    • Block lists?
    • Both allow and block lists, nested as key-values within the 'audience' property?
    • Changes in allow and block semantics based on visibility (e.g. given an audience list, it's an allow list for a private post, and a block list for a public one?)
    • Permissions varying per-person, e.g. Tantek Çelik can read my post, and Angelo Gladding can read it or edit it with Micropub updates?


Use Case: Providing post/data access to users who don't and won't have a website (e.g. non-techie friends and family)

  • Offering Github, email, and similar 3rd party auth options
  • User/password system
    • more maintenance for the site owner, but is the main way to provide your own authentication, and the only guaranteed way to auth someone even if they're not on social platforms (or email!)

Questions 1. What do IndieWeb sites in the wild support for 3rd party auth?

  • Twitter
  • email
  • Github all popular 3rd party auth providers. what else?
  • Mastodon

2. What else might be used?

Use Case: Sensitive files

  • Backups of emails, text messages, and personal photos
  • Owning your participation in a public mailing list, without exposing the emails on your website (what if the other participants don't want their e-mails archived?)
  • Access control on posts is part of the Micropub ecosystem (visibility, audience) but files, and media endpoints, are deliberately underspecified.
    • Sensitive files only accessible when are embedded in posts as images, or otherwise linked to from within the post content?

References

Useful pre-reading:

  • ... add stuff here


Notes

IndieWebCamps

IndieWebCamps
2021 Respectful Responses (P)Planning for 2021 Popups • and hopefully later in the year: IndieWebCamp Planning
2020 OnlineAustin London (O)Garden & Stream (P)West (O)Micropub (P)IndieAuth (P)Get Started with WP (P)microformats2 (P)Friendly WP Themes (P)East (O)Create Day (O)
2019 AustinOnlineNew HavenBerlinDüsseldorfUtrecht9th IndieWeb Summit (Portland)AmsterdamOxfordNYCBrightonBerlin2SF
2018 BaltimoreDüsseldorf8th IndieWeb Summit (Portland)SFOxfordNYCNürnbergBerlin
2017 BellinghamDüsseldorfNürnberg7th IndieWeb Summit (Portland)IstanbulNYCBerlinAustin
2016 NYCMITNürnbergDüsseldorf6th IndieWeb Summit (Portland)NYC2BrightonLA (Santa Monica)BerlinMIT2
2015 Cambridge MAGermany (Düsseldorf)Portland&Brighton (5th Summit) • EdinburghMITSF
2014 SFNYCPortland/NYC/Berlin (4th Summit)UK (Brighton)Cambridge MAOnline
2013 Portland (3rd Summit)UK (Brighton)Hollywood
2012 Portland (2nd Summit)UK (Brighton)
2011 Portland (Summit)

See Also